Consent in genetics Flashcards

1
Q

Who do we need to get consent from

A

Capable adults
Children
Gillick competent children
Vulnerable adults

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2
Q

What tests do we need consent for

A

Diagnostic
Predictive
Carrier testing
Research

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3
Q

What are the 6 rules of genetic testing

A

Be specific with what you’re testing for
Diagnostic or predictive?
Talk through possible unclear/incidental/unexpected/inconclusive findings
Ensure no 3rd party pressure
Ensure that person knows what they are consenting to
Is this the right time?

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4
Q

What considerations need to be made in genetic testing

A

Needs additional considerations as test results

  • have a wider impact on family and require sharing
  • test timing
  • may be incidental to presenting reason for testing
  • may have practical impact jobs/insurance
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